I got a letter about this after crying in front of my mom's case manger, my mom's doctor, and the respite care woman who came in for 2-4 hrs, irregularly, once a week, and in 4 months only once helped my mom use the bathroom. By then she was in assisted living, because she couldn't manage in my house. I needed a stair lift and a new shower. After 2 wks, they put her on low dose opioids that helped her move around enough to manage, without sedating her too much. They never offered me those. They're paying $400/day. I didn't get a red cent.
Great write-up and glad you're bringing awareness to the program. I share similar sentiments to what you've outlined and is exactly what I've started writing about these past few months!
How does it work with someone in assisted living needing a higher level of care (a relative in that situation). Assisted living charges more and more, then defaults to “you will have to move to a nursing home”.
PACE is actually built for exactly this. It covers the full continuum, from in-home support up through nursing-home-level care, so someone can keep getting more help as their needs grow. If your relative qualifies (the bar is nursing-home-level need and medicaid eligibility for full reimbursement), it's worth looking at whether there's a PACE program in their area.
Hi Jenny. So appreciate your post. Do PACE programs generally succeed in facilities with footprints similar to nursing homes, considering requirements such as on-site primary care?
I'm a certified community health worker and real estate developer interested in converting existing structures into alternative housing for seniors through the historic tax credit program. I have several properties under contract, all of which have the required entitlements for a PACE program, but could likely only house 10 participants.
Glad it was helpful! One thing worth clarifying: PACE participants typically live in their own homes across a broader service area and come to the center during the day, so PACE functions more as a day center plus clinic than as housing. A given program usually draws from a whole region rather than a single building. A center serving 10 participants would be challenging to set up. I would explore the surrounding area and if there are enough eligible individuals that you could enroll to make the math work
I got a letter about this after crying in front of my mom's case manger, my mom's doctor, and the respite care woman who came in for 2-4 hrs, irregularly, once a week, and in 4 months only once helped my mom use the bathroom. By then she was in assisted living, because she couldn't manage in my house. I needed a stair lift and a new shower. After 2 wks, they put her on low dose opioids that helped her move around enough to manage, without sedating her too much. They never offered me those. They're paying $400/day. I didn't get a red cent.
Awful!
Awful!
Awful!
There was a wonderful documentary highlighting On Lok by TalkingEyesMedia called Aging in America: The Years Ahead.
Great write-up and glad you're bringing awareness to the program. I share similar sentiments to what you've outlined and is exactly what I've started writing about these past few months!
Could you provide some guidance on how to find a pace program?
You can use this link to find a PACE program in your area: https://www.npaonline.org/find-a-pace-program
How does it work with someone in assisted living needing a higher level of care (a relative in that situation). Assisted living charges more and more, then defaults to “you will have to move to a nursing home”.
PACE is actually built for exactly this. It covers the full continuum, from in-home support up through nursing-home-level care, so someone can keep getting more help as their needs grow. If your relative qualifies (the bar is nursing-home-level need and medicaid eligibility for full reimbursement), it's worth looking at whether there's a PACE program in their area.
Hi Jenny. So appreciate your post. Do PACE programs generally succeed in facilities with footprints similar to nursing homes, considering requirements such as on-site primary care?
I'm a certified community health worker and real estate developer interested in converting existing structures into alternative housing for seniors through the historic tax credit program. I have several properties under contract, all of which have the required entitlements for a PACE program, but could likely only house 10 participants.
Glad it was helpful! One thing worth clarifying: PACE participants typically live in their own homes across a broader service area and come to the center during the day, so PACE functions more as a day center plus clinic than as housing. A given program usually draws from a whole region rather than a single building. A center serving 10 participants would be challenging to set up. I would explore the surrounding area and if there are enough eligible individuals that you could enroll to make the math work
Ah, Jenny, I follow. That makes sense. So appreciate the clarification and look forward to following along with your work.